As I read any passage about medical, I had to change to Google Search page, so don't worry I got nothing to say about any medical suggestions.
Every time I finish lunch, I start thinking about what to eat for dinner. Before sleep, I contemplate what to eat for tomorrow's breakfast, so as a simple person, eating is my little joy in life.
It's hard to emphasize your whole feeling, I must admit. It's different from teenagers refusing eating to pull up the SS size short skirt. Your paintings are so impressive, so intimate, and so human. I could feel a sense of hope hidden inside every 'seemed to be depressing' work.
Your paintings make me believe you will have the strength, energy, and health to travel around shopping, partying with foreigners, and tasting exotic food. Heaven blesses you and your family.
Thank you so much for your kind words about my art, and the hope you see. I do have hope. But, also patience as I wait to see if I can travel. And while I wait, I’ll write, and continue to paint. Thank you so much for reading.
Such a great post, Kim...so well written! And I love that despite everything, you can still work in some jokes...thank you for sharing this with everyone, already looking forward to next week's post. :-)
Incredible story! Thank you for sharing your journey. As someone who grew up with a mother with MS and having it myself for 34 years, I thought I had heard it all. Your story is unlike any I have ever heard. Your strength is inspiring and proof that true warriors can overcome what was once thought to be impossible. I look forward to the next post. Stay strong. #Useitorloseit #nevergiveup💪
Ohhhh Nancy, 34 years with MS. That’s a long journey with this disease. And also growing up with a parent who had it. I definitely know the effect it has had on my kids seeing me struggling - it’s not easy. But they are far more empathetic to people with disabilities for having grown up with a Mom with MS.
And yes, I too, thought I had prepared myself in my mind for the worst this disease could potentially throw at me; but never once did I think it would take my ability to eat food away. I try to remind myself on the very hard days, that without this feeding tube, pump, and formula, I would’ve died a year ago. So I am thankful to be alive, to still be here for my kids. Thank you for your kind, uplifting words, and thank you for reading about my life. It means so much.
Started off on Ocrevus and dang she does hit hard, on it for over a yr before my insurance started balking, now doing self injections of Kesimpta, which is still hard hitting and lasts longer as I do it ever 30 days. And I am on ana awesome diet and exercise routine. Doing all I can while I can and my neurologist says times are different and I might never see more than what I already have as I'm RRMS. Thank you again for sharing your story. And for responding to my comment. Means so much to connect with other PWMS. Sarah
Ummmm yeah Ocrevus hit me a bit TOO hard as you’ll read in my most recent post where I speak about a dark time caused by a DMT which I do not mention the name of. I’m actually going to be switching to Kesimpta soon too! I have been on my second attempt of Tysabri but it didn’t work. So onto the next. I’m happy to know someone who’s also taking that one! Take care hun,
Thank you for sharing your story. Your journey. I was diagnosed in 2019 with MS and have a real fear of the unknown. Just one leison in the wrong place and your entire life shifts. You are a prime example of my fear. I won't do dwell on it however I see you, I hear you, I feel you. Sending understanding, strength and love. Thank you again for your raw, vulnerable post. I subscribed. I will follow your journey and be inspired and humble by your perseverance. Sarah
Sarah, thank you for reading this post and for your kind words. As someone who has MS, you could’ve chosen not to read this (and I wouldn’t have blamed you!), because it can be scary not knowing what this disease has in store. However, when I was diagnosed in 2014, despite having debilitating relapse after relapse during the first few years, my neurologists were still following the now old fashioned idea of starting with first tier DMT’s then moving to second tier if those failed, etc. This idea has only recently been tossed out the window as neurologists are learning they need to hit MS hard from the onset. (So many newly diagnosed MS patients receive Ocrevus right at the start, which is a game changer to preventing disease progression like mine. Ocrevus didn’t even exist 9 years ago).
So, though I definitely understand your fear, I will tell you that if you are on a good hard hitting DMT, you’re already ahead of the game, and setting yourself up for a really good future. Other things that help for sure that I’ve learned the hard way, are not taking steroids too many times (I won’t ever take them again), also eating an anti-inflammatory diet, and exercising in whatever way you can . Those will help you in the long run so much. And hey, you were brave enough to read my super scary post, so you’ve got this!
Wow. Thank you for sharing. It has given me insight to something I knew very little about. I am sending you light and a big long hug, that is quite the battle you are fighting and you are rocking it.
I am feeling all that light you’re sending my way tonight, and I’ll definitely take that big long hug. Thank you for reaching out. Thank you for reading about my life; and this crazy thing that has happened to me, that I never anticipated in a million years. MS sure can throw some curveballs. My next blog comes out tomorrow, I hope you’ll stick around on this journey with me.
Thanks for sharing. I've learned a lot. I had no idea the affects of just smelling food would have on you. These posts will be a blessing to others. You really do have a gift in writing.
Thank you Darryl. Thank you for reading it. Each person that takes time out of their day to read my thoughts, and to learn about living life this way matters so much to me. 🙏🏻
Your story is so deeply moving, Kim. And you DO write so well! AND you paint so well! You are a creative human being with so much to offer. All the suffering you have gone through, are going through, is 'refining you in the refiner's fire,' you are becoming pure gold. I send you blessings as you wrestle with your 'angel.' Love, Aunt Eleanor
Hearing the words “you write so well” from you, such an avid reader (like my mom), means the world to me. There are so many days that I can’t physically do much at all, including painting; so I needed something else to occupy my mind. I needed another creative outlet, but with the hope that this one might help certain people feel less alone, and others understand what living with incurable illnesses is really like. The funny thing is, I never write it ahead of time. I write the whole thing on Tuesdays. I have lots of ideas of topics, but I wait to see which one I feel most like writing about on that day. Thank you for reading this, and supporting me in this new endeavour.
Firstly, I cannot help but to notice how amazing of a writer you are Kim. If this was a book, I would be binge reading from cover to cover. Secondly, this one hit me straight in the feels. Like James said, I love your sense of humour despite the hardships.
Have been telling Anthony how I can’t wait for Tuesdays now. Keep it coming darling, you’re doing a fabulous job at sharing your story 🫶🏻
Ohhhhh Chantal!! This means so much to me. Before I post, I always have so many second thoughts, and wonder if anyone will read it, or if it’s good enough. Your words mean so much to me. When you said you can’t wait for Tuesdays now?!!!! I’ll remember that forever. Thank you sweet friend. Love you
As I read any passage about medical, I had to change to Google Search page, so don't worry I got nothing to say about any medical suggestions.
Every time I finish lunch, I start thinking about what to eat for dinner. Before sleep, I contemplate what to eat for tomorrow's breakfast, so as a simple person, eating is my little joy in life.
It's hard to emphasize your whole feeling, I must admit. It's different from teenagers refusing eating to pull up the SS size short skirt. Your paintings are so impressive, so intimate, and so human. I could feel a sense of hope hidden inside every 'seemed to be depressing' work.
Your paintings make me believe you will have the strength, energy, and health to travel around shopping, partying with foreigners, and tasting exotic food. Heaven blesses you and your family.
Thank you so much for your kind words about my art, and the hope you see. I do have hope. But, also patience as I wait to see if I can travel. And while I wait, I’ll write, and continue to paint. Thank you so much for reading.
Take care,
Kim
Such a great post, Kim...so well written! And I love that despite everything, you can still work in some jokes...thank you for sharing this with everyone, already looking forward to next week's post. :-)
Btw...have you tried essential oils?!? ;-)
Ha!!! That just made me laugh out loud literally. And thanks for reading it James. It means a lot.
Incredible story! Thank you for sharing your journey. As someone who grew up with a mother with MS and having it myself for 34 years, I thought I had heard it all. Your story is unlike any I have ever heard. Your strength is inspiring and proof that true warriors can overcome what was once thought to be impossible. I look forward to the next post. Stay strong. #Useitorloseit #nevergiveup💪
Ohhhh Nancy, 34 years with MS. That’s a long journey with this disease. And also growing up with a parent who had it. I definitely know the effect it has had on my kids seeing me struggling - it’s not easy. But they are far more empathetic to people with disabilities for having grown up with a Mom with MS.
And yes, I too, thought I had prepared myself in my mind for the worst this disease could potentially throw at me; but never once did I think it would take my ability to eat food away. I try to remind myself on the very hard days, that without this feeding tube, pump, and formula, I would’ve died a year ago. So I am thankful to be alive, to still be here for my kids. Thank you for your kind, uplifting words, and thank you for reading about my life. It means so much.
Take care,
Kim
Started off on Ocrevus and dang she does hit hard, on it for over a yr before my insurance started balking, now doing self injections of Kesimpta, which is still hard hitting and lasts longer as I do it ever 30 days. And I am on ana awesome diet and exercise routine. Doing all I can while I can and my neurologist says times are different and I might never see more than what I already have as I'm RRMS. Thank you again for sharing your story. And for responding to my comment. Means so much to connect with other PWMS. Sarah
Ummmm yeah Ocrevus hit me a bit TOO hard as you’ll read in my most recent post where I speak about a dark time caused by a DMT which I do not mention the name of. I’m actually going to be switching to Kesimpta soon too! I have been on my second attempt of Tysabri but it didn’t work. So onto the next. I’m happy to know someone who’s also taking that one! Take care hun,
Kim
Thank you for sharing your story. Your journey. I was diagnosed in 2019 with MS and have a real fear of the unknown. Just one leison in the wrong place and your entire life shifts. You are a prime example of my fear. I won't do dwell on it however I see you, I hear you, I feel you. Sending understanding, strength and love. Thank you again for your raw, vulnerable post. I subscribed. I will follow your journey and be inspired and humble by your perseverance. Sarah
Sarah, thank you for reading this post and for your kind words. As someone who has MS, you could’ve chosen not to read this (and I wouldn’t have blamed you!), because it can be scary not knowing what this disease has in store. However, when I was diagnosed in 2014, despite having debilitating relapse after relapse during the first few years, my neurologists were still following the now old fashioned idea of starting with first tier DMT’s then moving to second tier if those failed, etc. This idea has only recently been tossed out the window as neurologists are learning they need to hit MS hard from the onset. (So many newly diagnosed MS patients receive Ocrevus right at the start, which is a game changer to preventing disease progression like mine. Ocrevus didn’t even exist 9 years ago).
So, though I definitely understand your fear, I will tell you that if you are on a good hard hitting DMT, you’re already ahead of the game, and setting yourself up for a really good future. Other things that help for sure that I’ve learned the hard way, are not taking steroids too many times (I won’t ever take them again), also eating an anti-inflammatory diet, and exercising in whatever way you can . Those will help you in the long run so much. And hey, you were brave enough to read my super scary post, so you’ve got this!
Take care,
Kimberly
Wow. Thank you for sharing. It has given me insight to something I knew very little about. I am sending you light and a big long hug, that is quite the battle you are fighting and you are rocking it.
Thank you from a fellow MS Warrior
I am feeling all that light you’re sending my way tonight, and I’ll definitely take that big long hug. Thank you for reaching out. Thank you for reading about my life; and this crazy thing that has happened to me, that I never anticipated in a million years. MS sure can throw some curveballs. My next blog comes out tomorrow, I hope you’ll stick around on this journey with me.
Take care fellow MS warrior,
Kim
Thanks for sharing. I've learned a lot. I had no idea the affects of just smelling food would have on you. These posts will be a blessing to others. You really do have a gift in writing.
Thank you Darryl. Thank you for reading it. Each person that takes time out of their day to read my thoughts, and to learn about living life this way matters so much to me. 🙏🏻
Your story is so deeply moving, Kim. And you DO write so well! AND you paint so well! You are a creative human being with so much to offer. All the suffering you have gone through, are going through, is 'refining you in the refiner's fire,' you are becoming pure gold. I send you blessings as you wrestle with your 'angel.' Love, Aunt Eleanor
Hearing the words “you write so well” from you, such an avid reader (like my mom), means the world to me. There are so many days that I can’t physically do much at all, including painting; so I needed something else to occupy my mind. I needed another creative outlet, but with the hope that this one might help certain people feel less alone, and others understand what living with incurable illnesses is really like. The funny thing is, I never write it ahead of time. I write the whole thing on Tuesdays. I have lots of ideas of topics, but I wait to see which one I feel most like writing about on that day. Thank you for reading this, and supporting me in this new endeavour.
Love you!
Firstly, I cannot help but to notice how amazing of a writer you are Kim. If this was a book, I would be binge reading from cover to cover. Secondly, this one hit me straight in the feels. Like James said, I love your sense of humour despite the hardships.
Have been telling Anthony how I can’t wait for Tuesdays now. Keep it coming darling, you’re doing a fabulous job at sharing your story 🫶🏻
Chantal
Ohhhhh Chantal!! This means so much to me. Before I post, I always have so many second thoughts, and wonder if anyone will read it, or if it’s good enough. Your words mean so much to me. When you said you can’t wait for Tuesdays now?!!!! I’ll remember that forever. Thank you sweet friend. Love you